My partner awoke at 4 a.m. on a mid-August day with a massive headache.
My partner awoke at 4 a.m. on a mid-August day with a massive headache. He dragged himself out of bed and went down to Squid Row for his usual 6 a.m. cup of coffee. He very shortly returned home, and promptly fell into bed.
This is a man who never, ever misses breakfast. When he awoke hours later, his Covid test was negative, but he was much worse: a fluctuating fever and blood oxygen levels that hovered on borderline, intense muscle aches and pain behind his eyes that required cold compresses.
Because he spends many hours a day gardening and mowing, tick-borne diseases are always at the front of our minds. Having had a neighbor die of tularemia several years ago, as well as the father of an acquaintance, helps keep this disease at the top of the list of possibilities.
The next morning, I suggested he ask his doctor to call in a complete tick panel to the hospital lab. She initially refused, as her protocol is to see the patient first. A little background history might help here. My partner spent decades as a pathologist; he spent his later years doing forensic work and only recently retired from consulting. He’s a very good diagnostician and is often frustrated by the current medical practices. When he declined to drive down to the hospital, she finally agreed to call it in. He stressed to her the importance of including a tularemia test.
As he watched his test results come in over the next few days, all of them were negative: Lyme, anaplasma, babesiosis, etc. The blood tests showed signs that his body was battling an infection, but he had no answers. He had more than an inkling that it was either babesiosis or tularemia.
He spent half a day in the emergency room getting poked and X-rayed, and as a precaution they sent him home with a couple of doxycycline pills with a prescription to be filled the next day. At this point he was sleeping 14 to 16 hours a day and was unable to walk a straight line most of the time.
Hours after returning from the hospital, he got markedly worse. His fever began to climb and he was bordering on delirium. He was admitted to the hospital for a brief stay, returning home the next morning.
After waiting four days, with no tularemia results, he called his doctor and asked. Her response was that she had forgotten to add the tularemia test to the order! Back to the lab, for the forgotten tularemia, plus West Nile virus and eastern equine encephalitis.
After two weeks of doxycycline, there was minimal improvement. The headache remained, as did the intense eye pain, now joined by neck pain and a persistent cough, with a still-borderline oxygen level, plus he was still sleeping 12 to 14 hours a day. In two and a half weeks he had gone from fit, vital and vigorous to a man unable to walk 50 feet without taking a three-hour nap.
At the end of the third week, he requested a redo of all the tests. One week later, there it was: tularemia. He called his physician and asked her to call in a prescription for Ciprofloxacin — a drug recommended for this particular infection. (The doxycycline seems to have only kept it at bay). Again she refused without having him see her, even though she had the test results in her hand. He went, she prescribed and now, except for the cough, he’s healing.
My partner had pneumonic tularemia, the most serious form of this disease. How did he get it? During the several hours that it takes him to mow our field, he one day likely ran over the remains of a dead rabbit, inhaling the dispersed results. The neighbor who died is believed to have acquired it the same way. The other gentleman had been working in a brush pile all day, then returned to his off-Island home, where it went undiagnosed. For a brief time after the first death, landscapers everywhere were wearing masks while mowing and then, unsurprisingly, they stopped.
I’ve nagged my partner for years to wear an N95 mask while mowing. I guess this is what it takes sometimes.
Dana Nunes lives in Chilmark.

Comments
An excellent and timely essay
Julian Wise ChilmarkAn excellent and timely essay. Dana, I never knew you were such a gifted writer! Well done.
I am so very pleased he has
Gabrielle West TisburyI am so very pleased he has made a good recovery. I had pretty much the exact experience though I believe mine came from a tick bite. I went back to the doctor three times before they called me weeks later with a positive diagnosis.
We live at the epicenter of tick borne diseases yet it seems that the medical community has yet to recognize the reality of the situation.
Tularemia is scary. One day
Kara OB/Fall RiverTularemia is scary. One day two summers ago I felt fine, went for a jog in Southern Woodlands with my sister and about an hour later I had a massive headache and could not get warm. We went to Stop n Shop in VH and I had to leave the store as I started to shake uncontrollably and my teeth were chattering. We drove directly to the hospital, and after the initial check in (they thought I was going through withdrawals) they brought me right back in, started an IV to get me to relax. They were amazing, the nurses thought right away tick borne illness and tested me for everything. They also immediately started me on doxycycline. A few days later I tested positive for tularemia. I was lucky-it was discovered early. Here are two stories about tularemia, thankfully, with happy endings. I know i am going to urge my family to wear masks while mowing and I urge others to do the same.
After I got tularemia I was
Robert Knight ChappaquiddickAfter I got tularemia I was told that you only can get it once. Then you have immunity. Is that true?
Scary story. Hope your partner has found a new MD.
Thankfully, your partner is
Melanie Irvington, New YorkThankfully, your partner is well informed and was able to advocate for himself in an increasingly challenging healthcare landscape. It sounds like it saved his life. I’m saddened he had to rely so heavily on his own perseverance and diagnostic skills while so sick, but also thrilled he figured it out and is on the mend!
This was exactly my reaction,
Susanna J. Sturgis West TisburyThis was exactly my reaction, though I added a few expletives for the MD and the US health-care "system".
I'd probably have died
Rebecca ChilmarkI'd probably have died because I am not medically knowledgeable enough to have advocated for myself as this experienced doctor had to do.
A huge shout out to Dana
Fernando Lana EdgartownA huge shout out to Dana Nunes for having published this amazing and informative article on The Vineyard Gazette about Tularemia.
Excellent read! Having
virginia yorke AquinnahExcellent read! Having survived those three tick infections through extensive research and years of suffering, it shows how important it is that we monitor and educate ourselves for our own health care. Good work! We all need someone like you in our lives.
Excellent article by Dana
Robert Skydell Oaxaca, MexicoExcellent article by Dana Nunes with two main takeaways:
The connection between mowing and tularemia is definitely something to be aware of and take necessary precautions. The other issue is the need to actively advocate for one's health.
About 30 years ago I was sure I had contracted Lyme disease for the first time. Lyme was not as much in the forefront as it is today, and I went to the walk-in clinic in VH to talk it over with my doctor. He was out for a few days and was being covered by a doctor from off-Island. I explained my symptoms including the bite site. Her reply floored me: "I don't know anything about Lyme so let's discard that as a possibility".
I told her to pick up the Merck reference on the desk and write me a script for doxi. She did. I recovered.
Many thanks for the
swe chilmarkMany thanks for the importance of "THE RIGHT OUTFIT" for the job. Gloves,helmet,glasses and double mask ,high boots and tick spray for smelling real nice!
I'm not a scientist, but the
just a thought tularemia hotspotI'm not a scientist, but the thought of a rabbit carcass might be plausable for those on a tractor in a large field. For the rest of us, the dried rabbit poop and pee seems more likely a way to catch it , based upon the large number of residents who contracted this
Hi Dana! My brother Michael
Beth Reed LaGambina PlymouthHi Dana! My brother Michael is hoping you will be attending your upcoming class reunion.
Add new comment